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©The Sick Children's Trust

Parents of boy born with half a heart back Pyjama Party campaign

Written by Samantha Lade, Donr

Published on Tuesday, 23rd October 2018

Parents of boy born with half a heart back charity's pyjama party campaign

The parents of a little boy who was born with half a heart are calling on their local community to support The Sick Children's Trust's Pyjama Party fundraiser this October.

Claire and Alex, from Hemel Hempstead, are asking people to get involved with The Sick Children's Trust's Pyjama Party campaign to help the charity support more families just like theirs, when their child is seriously ill in hospital.

Teddy was born with hypoplastic left heart syndrome in which the life side of his heart did not develop properly in the womb.

At just two days old he was rushed to Great Ormond Street Hospital (GOSH) for open heart surgery. Although the surgery was a success, and Teddy made good progress initially, one month later he suffered a cardiac arrest and was resuscitated for 35 minutes.

Whilst Teddy fought for his life at GOSH, his parents along with his two sisters were supported at The Sick Children's Trust's Rainbow House, just minutes from Teddy's hospital bedside. 

Claire, Teddy's mum, said: 'Rainbow House was a godsend. It meant we didn't have to decide between being with Teddy or the girls. We could eat a meal as a family in the communal kitchen and both the girls could have a bath before settling down to bed. Alex and I then took it in turns going over to see Teddy on the ward.

'Thankfully, since that scary ordeal, Teddy has been going from strength to strength! He’s recently undergone his third open heart surgery which was a planned procedure carried out to improve his condition. 

'It was success and Teddy is making a great recovery!'

Rainbow House is one of ten 'Homes from Home' run by The Sick Children's Trust. The charity supports around 4,000 families with seriously ill children in hospital every year – and although the accommodation is provided free of charge to families, it costs the charity £30 to support a family for one night.

Claire and Alex are now encouraging people to take part in The Sick Children's Trust's national fundraising campaign, Pyjama Party, to raise at least £30 so that the charity can keep another family minutes from a loved one's bedside.

To find out more about The Sick Children's Trust's Pyjama Party, or to request a free fundraising pack, call 020 7638 4066.